The best word used to describe what it is like living with multiple illnesses is isolating. It is isolating because very few people understand what it is like living with a whole range of illnesses. It is isolating because you are not necessarily in a position to work, and have interaction found in a workplace. It’s isolating because after awhile you stop being invited to things, as you generally can’t turn up, so people think there is no point inviting you. It is isolating because friendships disappear, as you are no longer in a position to go out and see people. You know that the friendships that remain will last a long time, because these are the ones that have stuck by you.
When you spend your days at home trying to get better from these illnesses you’re unlikely to get better from, you eventually start to think do I have a reason for being alive? Is there really a plan or purpose to my life?…. The reality is that the plan that I had for my life is very different to the plan that God has for my life, and that doesn’t mean that I don’t have a purpose in being here on earth.
I have thousands of thoughts going around my head, screaming at me, vying for my attention, telling me something is true or something is not true that I become confused and overwhelmed that I don’t know which voice to listen to anymore.
People walking through the illness or disability are aware that they are not the only one who are in that situation, that they are not the only ones who are suffering, and that some people’s situations are worse than their current situation.
Although I seem to suffer from spiritual amnesia, and forget all the things God has done for me as I battle the hardships of life, God will always find a way to remind me of who He is and His love for me.
Living with multiple illnesses is like constantly tiptoeing around nicely placed rows of dominoes hoping everything remains in place. As soon as one domino is knocked, the whole system starts to collapse.
Thud! I crash to the ground yet again. I look around to check there are no broken bones this time, or if the skin on my knees and hands have been scrapped.
A list of the ten most helpful things people can do to help someone living with multiple illnesses and disabilities
The heart of everyone wanting to support those with multiple illnesses and disabilities is to try and help them. However, sometimes actions are not very helpful.
There seems to be a common misconception that only those in a wheelchair or who are elderly are in need of a mobility parking pass